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No Pity: A Community for People with Disabilities

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Work update.... [Jul. 21st, 2012|10:44 pm]
No Pity: A Community for People with Disabilities

starrynight
I finished my first week of work and I'm seriously thinking of quitting. I'm not feeling too hot so I'm a little cranky at the moment, but basically my job is scheduling me for shifts that I find are too long and want me to work 15-20 hours instead of the 12 I requested.

When I said that working more than four hours is difficult for me, the manager said: "but you won't always get shifts that are four hours."

I wrote on my paper application that I only wanted 12 hours a week, and same with the online application.

Within five minutes of working, I sweat uncontrollably with a/c, so I'm always tired during my shifts and I now know why I'm not allowed a stool as a cashier. There's too much going on, like having to remove sensors of clothes, having to put hangers and clothes on a return rack, etc.

I'm going to try to stick it out this week but I doubt I'll stay around after that. It's not worth running myself ragged for $7.25/hr at TJ Maxx.
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I did it! [Jul. 14th, 2012|12:44 pm]
No Pity: A Community for People with Disabilities

starrynight
I got a job, and I start Tuesday. I'm a little nervous, I've been out of work for years and I don't know how I'll handle it.

I asked for stool when cashiering but I was told that it wouldn't be possible, so I asked if I could bring water in to keep my hydrated as I get hot very easily.

I'm a little bummed about not being able to have a stool or chair but I'll do the best I can, I guess. And even though the hours range from 15-20 per week, I can do as little or as much as I want, so I'm going to work twelve hours and leave it at that.

For those who have not worked in a while and returned to work, did you find the adjustment hard?

I know this is going to affect my SSI but I don't care since I don't get much from it to begin with.
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Working while disabled [Jul. 10th, 2012|04:12 pm]
No Pity: A Community for People with Disabilities

starrynight
Hello all! I'm new to the community. I'm nearly thirty and lately, I've been thinking of going back to work on a very part time basis. I have Bipolar I, arthritis brought on by hypermobility, severe hypertension brought on by excess adrenaline (which also means I get hot and sweaty very easily), and chronic fatigue.

I left the work force some years ago but I've only started to realize that SSDI isn't cutting it. While I am grateful for the income I do get, it's not enough. Call me crazy, but I miss working and earning my own money. Sitting at home all day is BORING.

Ideally, I'd like to work something like 10 hours a week.

Any advice for someone who is trying to get back into the workforce? Also, what kind of accomodations would you make? I was thinking something like a stool if I end up cashiering, and easy access to water and ice (if applicable).
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Class A Disability [Jun. 20th, 2012|11:41 pm]
No Pity: A Community for People with Disabilities

chasingtides
I actually managed to work with my local Office of Vocational Rehabilitation and recently got a full time job with their help. I'm super happy and it seems to be working.

However, on some of my paperwork - I've been reading the copies slowly at night - it has me marked as having "class A disability." I don't know what this means (for the USA) and Google isn't helping. Can anyone here give a heads up?
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Intro Thingie Like: [May. 17th, 2012|03:24 pm]
No Pity: A Community for People with Disabilities

fisher_queen
[Current Mood |chipperchipper]

Hi, I'm
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Hi, I'm <lj-user="fisher_queen"> but I also go by Jane Tiberius or JT in some internet circles. I'm turning 29 in a few months and I found this community through surfing through random journals. I have physical coordination disabilities that have followed me through my entire life, spent time bored in special education for a long while because they had my "label" as emotionally impaired for a while as well. I suspect, now, looking back at my old reports, and the way I do things now, that I actually am an aspie. A therapist also brought up this possibility and that was when I really started to consider it as possible.

Besides this, I wound up with crappy joints and fibro and have some nerve damage from a surgery two years ago, so that I end up using a cane in the winter, and when my knees inevitably decide to mess with me. It's taken me ages, until about last winter, to accept that using a cane is something that I need to do, and, well, for me to stop being ashamed of my disabilities. Now, my cane is bright pink and shiny and I'm not afraid of people noticing it. I guess, overall, I'm finally learning to accept myself, and that includes my limitations.

I'm coming in here from having spent several years in special education, both mainstreaming into regular classes for part of the day, and from having been in a full time special ed classroom, and I definitely have some...feelings...on the state of special ed and what it is and has been. So that's probably where you'll see ME commenting most. Hi!
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volunteers needed for new research [May. 11th, 2012|12:57 am]
No Pity: A Community for People with Disabilities

sammason
[Tags|]

Hello everybody

I've been lurking on this comm for a while. Now I've been asked to post the recruitment ad below. The researcher is a personal friend of mine so I know that she's genuine. If you'd like to contact her, please use the contact details she gives below. She says this:

My name is Jessica Worner, and I am looking for volunteers to take part in a research project that I am doing as part of a Social Psychology MSc degree at the University of Surrey.
The research aims to look at the experiences of people who would describe themselves as disabled with a physical impairment or as having a physical disability, and who also identify as lesbian, gay, bisexual or otherwise do not identify as heterosexual.
To help me do this, I am looking for volunteers to take part in informal and confidential interviews that will last up to 90 minutes.
It is hoped that by doing this research, a better understanding may be gained of some of the experiences and issues faced by LGB people with physical disabilities.
To take part in interviews, you must be over 18 years of age and currently live in the UK.
If you are interested in taking part, or would like any more information about the research, please feel free to contact me via email at jw00073@surrey.ac.uk or by calling 07783 267006.
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(no subject) [Apr. 2nd, 2012|06:19 pm]
No Pity: A Community for People with Disabilities

prophetstar
I think I am having a mental breakdown.
I have a disability.
It's something I've been taught
to accept and overcome for my
entire life.
I have overcome it to the point that in college,
my parents thought that they should go ahead
and throw away all of my documentation.
Now, I have had to drop out of my externship
for something  related to disability (they said I had no social skills),
and a counselor has convinced me to go to Department of Rehabilitative Services.
My parents are 150% against this plan, and they are refusing
to go with me and explain a disability that I have never
learned about because it has never received a label.
They tell me that if I go to DRS, then I will be giving into my
disability and receiving a label, which will haunt me for the rest of my life.
The hardest part is that I am 25, and I work for an agency that promotes
the rights for people who have disabilities.
I am graduating in May with my Masters in Education (would have also
gotten my license for teaching if I had the proper accomodations and did
not have to leave my externship).
I want to teach early childhood special education,
and I am living every day as a hypocrite because I
walk into work where they accept my disability, but then
I come home, and I have to pretend that the "D word" (as my parents call it)
does not exist.
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Organizing [Mar. 26th, 2012|07:33 am]
No Pity: A Community for People with Disabilities

chasingtides
Hi! I've posted here a couple of times about my own health issues (mostly neurological) and now I've got a bit of a broader issue.

I help organize with the Occupy movement in a couple of East Coast cities in the US. For the most part this has been pretty awesome, even if the police aren't always quite as awesome about my moving slowly as my fellow Occupiers. However, something came up at a coalition meeting and I can see this getting long.Collapse )But I'm also co-organizing an alternative training to that one because PWDs weren't the only disenfranchised, marginalized group in that training. But if I'm bottomlining that, I figured I would ask the community what they've experienced/would like to see in a training for direct action facilitation (ie training for people who organize protests) in regard to people with disabilities. What would, personally or communally or socially or whathaveyou, make it better or more accessible?

(And obviously, I won't be yelling at anyone to stand up from the ground in order to speak when they say they can't.)
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(no subject) [Mar. 13th, 2012|05:30 pm]
No Pity: A Community for People with Disabilities

prophetstar
I am so tired of this.
I work in the disability field.
I am student teaching and completing
my last externship towards
my graduate degree in
Early Childhood Special Education.
Yet, it is all just a giant disagreement
in my head because I am learning that
my disability (which is currently a neurological impairment)
affects my life in so many ways, and yet
my parents are restricting me from getting
an actual diagnosis, even though
it will most likely cause me to fail my
final externship.
I have done well in all of my academic classes,
and now, everything I do is wrong.
I am at a loss for what to do, but
in the pit of my stomach, I honestly think
that this disability is affecting my life
in more ways than I ever estimated.
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(no subject) [Feb. 24th, 2012|09:20 pm]
No Pity: A Community for People with Disabilities

chasingtides
So I'm not sure if this is fully community-appropriate, but I figured you folks would know and I could take it down if it's not.

I'm 25 and in the US. I just got a decent job after being unemployed, but the caveat is No Benefits. This means, of course, that in six months, I'll be AWOL on docs and scripts and be basically unable to work. (I have two kinds of dystonia, RSD, and migraines.) Clearly, it's a Situation.

It's been suggested that since Vocational Rehab is taking forever in my area (two visits, since I got in the system in June), I might see a social worker about what my options are, possibly through the same hospital system my main specialists are through. A-okay. But how does one go about doing that?

(Other alternatives are also welcome.)
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