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Catheter -- experiences?? [Jun. 21st, 2013|07:02 pm]
No Pity: A Community for People with Disabilities



I’ve always had the odd slip-up with my bladder, but usually my control is very good, although I have good & bad days with it. When I’m stressed or upset it's not, (“stress-wee” if you will), I'm on tablets for it & for anxiety. I had a cat & dachshund who had the same problems; the dachshund even peed while he walked.

I've been in situations where I’ve been unable to move, speak (apart from foldmaking a noise like “AUUUGH”), or think cos the pain's so bad, & any accidents are like a cloud burst. I never feel totally empty. I could be on the loo for ages but not be “done”. Where I live, they all try their best for me but they can't do my things every 5 secs; (they can't do anyone's things every 5 secs)

I'm sick to death of all this & want a cath – an inside one – now -- but apparently there's no medical need for me to have one & it'll make me more disabled(!)

Every time I voice my concerns it's just chalked up to anxiety, & if I went out more I’d be fine
[sarcasm](course I will, I’ll just hold it in all day, shall I?? [/sarcasm]
I've always just managed with adult nappies (diapers) but I hate them cos it's embarrassing, & when I’ve been out they've always been drenched.

I want to go to various things I’ve always had a yen for – Renfaires, folk festivals etc. I’m a CPAP patient so I wouldn't manage all day cos of being unable to stand, no hoist (something about insurance) I also want to do supported living in the future, & there'd be more chance of this working was I cathed.

What should I say to the dr. when I see them ??
Is it worth getting a carer on-side ?

If you've got one

1 – how do you manage??
2-- What does it feel like ??
3 – How long did it take to get it ??
4 – Do you ever regret your decision ?? Why/why not ??

[User Picture]From: kazumitsu
2013-06-29 11:51 am (UTC)
An alternative to the catheter straight away maybe cloth pads. If you look at websites where they have cloth sanitary towels You will find instructions sometimes on how to make your own. If they hold much more water and more comfortably and no more plastic nappy like things. It may help in the short term.
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[User Picture]From: moontoad
2013-06-29 01:32 pm (UTC)
I don't have the same issue, but my friends who do say that the internal catheters are only when absolutely positively necessary. So many infections and problems.

I am guessing that you're female? Have you tried the easy and cheap route of using things like Poise pads until you get things figured out?
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